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Gaucher Disease

February 15, 2018 by carrie

Medicine X 2017: Building Disease Specific Educational Tools and Resources

Last year, I had the incredible opportunity to co-present at the 2017 Medicine Ed X conference at Stanford University in California.  The innovative ideas that were being presented were so exciting and encouraging, yet they were mostly geared towards those with common physical and mental health … [Read more...] about Medicine X 2017: Building Disease Specific Educational Tools and Resources

Filed Under: Advocacy Tagged With: childhood rare disease, Gaucher Disease, MedX, social media, video presentation

May 23, 2017 by carrie

Thank you Henri Termeer

It seems that almost everyone in the rare disease community has a personal story about Henri Termeer. Here is mine -- A few years ago at the Global Genes gala, my husband (Robert Ostrea, MBA) and I were seated at Henri Termeer's table because of our connection to the Gaucher community. I will … [Read more...] about Thank you Henri Termeer

Filed Under: Personal Tagged With: Gaucher Disease, Global Genes, Hannah, Henri Termeer

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