Last year, I had the incredible opportunity to co-present at the 2017 Medicine Ed X conference at Stanford University in California. The innovative ideas that were being presented were so exciting and encouraging, yet they were mostly geared towards those with common physical and mental health disorders. I felt so fortunate to be bringing the rare disease community’s experiences and perspectives in a breakout session that opened the eyes to those who attended about the unique challenges those affected by rare disease face.
About Carrie
Carrie Ostrea, principal in Ostrea Consulting LLC, is a rare disease advocacy strategist working with nonprofit and industry organizations in the rare disease space. She is also the Executive Director and Co-Founder of the Little Miss Hannah Foundation, a 501(c)3, non-profit organization which was created to honor her 3-year-old daughter, Hannah, who lost her battle to Gaucher Type 2/3, an ultra-rare genetic disorder.
