• Skip to main content
  • Skip to footer

Ostrea Consulting LLC

  • Home
  • Experience
    • My Story
  • Testimonials
  • Services
    • Blog
  • Newsletter
  • Contact

February 15, 2018 by carrie

Medicine X 2017: Building Disease Specific Educational Tools and Resources

Last year, I had the incredible opportunity to co-present at the 2017 Medicine Ed X conference at Stanford University in California.  The innovative ideas that were being presented were so exciting and encouraging, yet they were mostly geared towards those with common physical and mental health disorders.  I felt so fortunate to be bringing the rare disease community’s experiences and perspectives in a breakout session that opened the eyes to those who attended about the unique challenges those affected by rare disease face.

Share this:

  • Click to share on Twitter (Opens in new window)
  • Click to share on Facebook (Opens in new window)

Like this:

Like Loading...

Related

Filed Under: Advocacy Tagged With: childhood rare disease, Gaucher Disease, MedX, social media, video presentation

About Carrie

Carrie Ostrea, principal in Ostrea Consulting LLC, is a rare disease advocacy strategist working with nonprofit and industry organizations in the rare disease space. She is also the Executive Director and Co-Founder of the Little Miss Hannah Foundation, a 501(c)3, non-profit organization which was created to honor her 3-year-old daughter, Hannah, who lost her battle to Gaucher Type 2/3, an ultra-rare genetic disorder. 

Footer

Social Media

My “Rare” Life

My Story
Experience
Services
Testimonials
Advocate's Spotlight
Blog

Contact Info

Email: [email protected]

Phone: 702-706-5750

Address:
10624 S. Eastern Avenue #A847
Henderson, NV 89052

Copyright © 2023 · Executive Pro on Genesis Framework · WordPress · Log in

%d bloggers like this: