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Advocate Spotlight

May 31, 2017 by carrie

Spotlight – Angie Urbano

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Angie Urbano Parent Advocate | Blount's Disease About Angie: … [Read more...] about Spotlight – Angie Urbano

Filed Under: Advocate Spotlight Tagged With: advocate, Angela Urbano, Blount's Disease

May 17, 2017 by carrie

Spotlight – Jocelyn Duff

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Jocelyn Duff Parent Advocate | Charcot Marie Tooth Disease Type 4J … [Read more...] about Spotlight – Jocelyn Duff

Filed Under: Advocate Spotlight Tagged With: CMT4J, Jocelyn Duff

May 4, 2017 by carrie

Spotlight – Gay Grossman

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. E. Gay Grossman Parent Advocate | ADCY5 About Gay: San Diego, … [Read more...] about Spotlight – Gay Grossman

Filed Under: Advocate Spotlight Tagged With: ACDY5, advocate, Gay Grossman

April 26, 2017 by carrie

Spotlight – Andrea Taylor

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Andrea Taylor Advocate | Arterial Tortuosity Syndrome About Andrea: … [Read more...] about Spotlight – Andrea Taylor

Filed Under: Advocate Spotlight Tagged With: advocate, Andrea Taylor, Arterial Tortuosity Syndrome, ATS

April 19, 2017 by carrie

Spotlight – Shannon Burkoth

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Shannon Burkoth Patient Advocate | Narcolepsy About Shannon: … [Read more...] about Spotlight – Shannon Burkoth

Filed Under: Advocate Spotlight Tagged With: advocate, narcolepsy, Shannon Burkoth

April 13, 2017 by carrie

Spotlight – Melissa Hogan

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Melissa Hogan Parent Advocate | Hunter Syndrome About Melissa: … [Read more...] about Spotlight – Melissa Hogan

Filed Under: Advocate Spotlight Tagged With: advocate, Hunter Syndrome, Melissa Hogan, MPS, Saving Case

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Email: carrie@ostreaconsulting.com

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