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advocate

December 14, 2017 by carrie

Spotlight – Mindy Youngs

It’s time to let the world get to know our amazing rare advocates! Each month I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Mindy Youngs Parent Advocate | GAND About Mindy: Oxnard, CA … [Read more...] about Spotlight – Mindy Youngs

Filed Under: Advocate Spotlight Tagged With: advocate, GAND, Mindy Youngs

November 14, 2017 by carrie

Spotlight – Bo Bigelow

It’s time to let the world get to know our amazing rare advocates! Each month I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Bo Bigelow Parent Advocate | USP7-Related Diseases About Bo: … [Read more...] about Spotlight – Bo Bigelow

Filed Under: Advocate Spotlight Tagged With: advocate, Bo Bigelow, USP7

July 5, 2017 by carrie

Spotlight – Lisa Deck

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Lisa Deck Patient Advocate | Stroke/Moyamoya Disease About Lisa: … [Read more...] about Spotlight – Lisa Deck

Filed Under: Advocate Spotlight Tagged With: advocate, Lisa Deck, Moyamoya Disease, Stroke

June 14, 2017 by carrie

Spotlight – Taylor Gurganus

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Taylor Gurganus Parent Advocate | Bohring-Opitz Syndrome About … [Read more...] about Spotlight – Taylor Gurganus

Filed Under: Advocate Spotlight Tagged With: advocate, Bohring-Opitz Syndrome, Taylor Gurganus

June 7, 2017 by carrie

Spotlight – Mary Elizabeth Parker

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Mary Elizabeth Parker Advocate | Undiagnosed Community About Mary: … [Read more...] about Spotlight – Mary Elizabeth Parker

Filed Under: Advocate Spotlight Tagged With: advocate, Mary Elizabeth Parker, undiagnosed

May 31, 2017 by carrie

Spotlight – Angie Urbano

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Angie Urbano Parent Advocate | Blount's Disease About Angie: … [Read more...] about Spotlight – Angie Urbano

Filed Under: Advocate Spotlight Tagged With: advocate, Angela Urbano, Blount's Disease

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