I have had the opportunity to work with over 1000 rare disease advocates and hundreds of biotech/pharmaceutical industry professionals. Working with those who are just as passionate as I am about making progress towards treatment, care, and hope is very rewarding. Here are just a few of the recommendations I have received – click here to read more
Executive Director of the International WAGR Syndrome Foundation
When our rare disease nonprofit organization, the Int’l WAGR Syndrome Association, needed professional assistance to reorganize and restructure for the future, we hired Carrie Ostrea to help facilitate and create our Strategic Plan. Carrie’s incredible combination of experience and passion was obvious every step of the way, as was her ability to help us determine where we wanted to go and who we wanted to be. Carrie worked with us to create the formal roadmap for our future, addressing each of our concerns, strengths, and challenges. We now have a focused, detailed Strategic Plan to follow as well as the knowledge and motivation we needed to move our organization to the next level. We are so pleased with our Strategic Plan project that we are now working with Carrie on creating our Strategic Fundraising Plan.
Board of Directors – Alport Syndrome Foundation
The Alport Syndrome Foundation engaged Carrie to guide us through our Strategic Planning process and facilitate an in-person planning session for our Board of Directors — it was well worth it. She was thoughtful and organized throughout, not to mention a pleasure to work with. Most importantly, she was very skilled at guiding our board through some growing pains as we move from a small, volunteer-based organization to a medium-size professional one. Indeed, Carrie didn’t just bring general consulting skills to the table, but also very specific knowledge of the rare-disease non-profit space that will help us with certain initiatives. We’re looking forward to continuing to work with Carrie in the future.
President of the National Gaucher Foundation of Canada
I would highly recommend the services of Carrie Ostrea. Our organization, the National Gaucher Foundation of Canada hired Carrie to help us create a strategic plan. Carrie was extremely efficient, knowledgeable and focused, she helped us create a road map for our way forward. Carrie is extremely adept at navigating the rare disease world. Carrie is very engaging and definitely motivated us to implement the changes she suggested.
President at Curing Retinal Blindness Foundation
Carrie didn’t just help my organization to move forward – she ignited my team to grow and to soar! Carrie worked with my team members and me independently and together to get everyone on one page, focusing on their individual talents and interests while creating a big picture of collective impact. I highly recommend that organizations big and small, new and veteran, consult with Carrie to take a new, more efficient approach to maximizing the team efforts.
Rare Disease Advocate – Public Speaker
Carrie is an incredible leader and mentor. As a leader she helped us create a plan of action for our foundation to take it to the next level and exceed our goals. Her compassion and drive for the rare disease community is beyond measure- she always goes the extra mile to make sure that everything is taken care of and all needs are met. As a mentor she helped take me from a parent advocate to an Executive Director within just a few short years. Her experience and insight helped me to understand the community, the industry and how to become a better rare disease advocate.
Kelly Trout, RN, BSN
Board of Directors at International WAGR Syndrome Foundation
Carrie Ostrea has a unique set of skills. She has a stellar background in business, a broad experience with nonprofit organizations, and a personal passion for the rare disease community. My small nonprofit was struggling – we knew we could reach a new level of effectiveness, but nothing we tried really worked. Hiring Carrie to guide us was the smartest thing we’ve ever done. She started by conducting a comprehensive evaluation of every aspect of our organization, from interviewing every leader and assessing our organizational structure, to reviewing our website, newsletter, and publications.
Her recommendations were so spot-on that we are implementing virtually every one of them. Our whole team has been transformed. The road map that Carrie helped us to create for our organization is empowering, motivating, and already successful beyond our hopes. We are so excited about the future now, because Carrie showed us exactly how to get there.
Chris Moen, M.D.
President of the Choroideremia Research Foundation
Our organization, the Choroideremia Research Foundation, brought Carrie Ostrea in to look at our current operating structure and help to identify changes that could help us grow stronger and more effective. Carrie was extremely thorough in communicating with our leadership team to identify our strengths and weaknesses. She put together a comprehensive action plan for our Board of Directors to review and utilize as our new operating structure. Carrie was always available for questions via email and phone throughout this process. She is extremely personable and professional both in her individual discussions as well as her presentation to our Board. Carrie truly seems passionate about her work; it felt as if she was invested in our success as an organization.
We’re now four months past our engagement with Carrie and have already begun to reap the benefits of her experience and recommendations. I would strongly recommend Carrie to other small non-profit organizations like ours who are looking to make a jump in their fundraising, patient engagement, or other activities.