It seems that almost everyone in the rare disease community has a personal story about Henri Termeer. Here is mine -- A few years ago at the Global Genes gala, my husband (Robert Ostrea, MBA) and I were seated at Henri Termeer's table because of our connection to the Gaucher community. I will … [Read more...] about Thank you Henri Termeer
Hannah
Hope, Loss, and Survival
Our Little Miss Hannah Foundation hosted our first annual Vegas Cares About Rare Kids 5K on February 25, 2017. It was an amazing success not only by the turnout of over 500 people in attendance, but by the opportunity to introduce our community to 21 rare kids in our area. Our Little Miss Hannah … [Read more...] about Hope, Loss, and Survival
