It’s time to let the world get to know our amazing rare advocates! Each week I will be highlighting an advocate here in my blog as well as social media. If you would like to be featured in the spotlight, please click here. Angie Urbano Parent Advocate | Blount's Disease About Angie: … [Read more...] about Spotlight – Angie Urbano
Advocate Spotlight
Spotlight – Jocelyn Duff
It’s time to let the world get to know our amazing rare advocates! Each week I will be highlighting an advocate here in my blog as well as social media. If you would like to be featured in the spotlight, please click here. Jocelyn Duff Parent Advocate | Charcot Marie Tooth Disease Type 4J … [Read more...] about Spotlight – Jocelyn Duff
Spotlight – Gay Grossman
It’s time to let the world get to know our amazing rare advocates! Each week I will be highlighting an advocate here in my blog as well as social media. If you would like to be featured in the spotlight, please click here. E. Gay Grossman Parent Advocate | ADCY5 About Gay: San Diego, … [Read more...] about Spotlight – Gay Grossman
Spotlight – Andrea Taylor
It’s time to let the world get to know our amazing rare advocates! Each week I will be highlighting an advocate here in my blog as well as social media. If you would like to be featured in the spotlight, please click here. Andrea Taylor Advocate | Arterial Tortuosity Syndrome About Andrea: … [Read more...] about Spotlight – Andrea Taylor
Spotlight – Shannon Burkoth
It’s time to let the world get to know our amazing rare advocates! Each week I will be highlighting an advocate here in my blog as well as social media. If you would like to be featured in the spotlight, please click here. Shannon Burkoth Patient Advocate | Narcolepsy About Shannon: … [Read more...] about Spotlight – Shannon Burkoth
Spotlight – Melissa Hogan
It’s time to let the world get to know our amazing rare advocates! Each week I will be highlighting an advocate here in my blog as well as social media. If you would like to be featured in the spotlight, please click here. Melissa Hogan Parent Advocate | Hunter Syndrome About Melissa: … [Read more...] about Spotlight – Melissa Hogan
