Ostrea Consulting LLC

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Spotlight – Andrea Taylor

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Andrea Taylor Advocate | Arterial Tortuosity Syndrome About Andrea: … [Read more...] about Spotlight – Andrea Taylor

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Bringing Rare Disease to Stanford University’s #MedX

I'll be honest. I had no idea what to expect when I was headed to MedX this weekend.  What I did know is that an abstract that my rare friends and I put together was accepted, and we were to present it at Stanford University's MedX Program. Me.  A rare mom.  Talking about Hannah, Gaucher Disease, … [Read more...] about Bringing Rare Disease to Stanford University’s #MedX

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Spotlight – Melissa Hogan

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Melissa Hogan Parent Advocate | Hunter Syndrome About Melissa: … [Read more...] about Spotlight – Melissa Hogan