Thank you Coriell Institute for Medical Research for sharing our family’s story and why we are so passionate about working towards change in our #raredisease community!
“Advocacy can give patient families – families who have been dealt an often life-changing diagnosis – an opportunity to take charge of their situation, participate in research, and focus on the possibility of a better future for those affected by these diseases. Perhaps no patient advocate represents this better than Carrie Ostrea.”
