Develop strong support and empowerment programs for your rare disease community.
About Carrie
Carrie Ostrea, principal in Ostrea Consulting LLC, is a rare disease advocacy strategist working with nonprofit and industry organizations in the rare disease space. She is also the Executive Director and Co-Founder of the Little Miss Hannah Foundation, a 501(c)3, non-profit organization which was created to honor her 3-year-old daughter, Hannah, who lost her battle to Gaucher Type 2/3, an ultra-rare genetic disorder.
