Ostrea Consulting LLC

by

My Passion for Advocacy

One of the most fulfilling things for me since Little Miss Hannah passed away in 2011 was to mentor other patients, families, and organization leaders to create HOPE for their community.

I’ve had the opportunity to work with over 1000 advocates in our rare disease community as well as hundreds of biotech/pharma partners towards one common goal – change for our future in the rare disease space. Whether that is starting or strengthening a nonprofit or support group, funding science for research, creating awareness and marketing campaigns, bridging connections, or just a shoulder to vent on — my passion was to help make it happen.

I will be continuing this passion in multiple ways including this blog, Twitter, and my Facebook page where I will share tidbits, articles, upcoming events, educational opportunities, and more with anyone interested in advocating for the rare disease space. This is a non-biased site, so you will see posts from many different organizations that work to support rare diseases groups, nonprofits, marketing, etc.

Carrie Ostrea
Little Miss Hannah’s Mom
Ostrea Consulting LLC

About Carrie

Carrie Ostrea, principal in Ostrea Consulting LLC, is a rare disease advocacy strategist working with nonprofit and industry organizations in the rare disease space. She is also the Executive Director and Co-Founder of the Little Miss Hannah Foundation, a 501(c)3, non-profit organization which was created to honor her 3-year-old daughter, Hannah, who lost her battle to Gaucher Type 2/3, an ultra-rare genetic disorder.