I am a rare disease advocacy strategist working with nonprofit and industry organizations in the rare disease space. I have provided mentoring and support for more than 300 rare disease nonprofit organizations and in the areas of business structure, marketing and communications, event planning, and social media training. I am also the Executive Director and Co-Founder of the Little Miss Hannah Foundation, a 501(c)3, non-profit organization which was created to honor my 3-year-old daughter, Hannah, who lost her battle to Gaucher Type 2/3, an ultra-rare genetic disorder.
| Rare Disease Patient Advocacy and Engagement
| Event Planning and Coordination
| Nonprofit Organization Management