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Advocate Spotlight

April 6, 2017 by carrie

Spotlight – Jeff Wuchich

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Jeff Wuchich Parent Advocate | Alternating Hemiplegia of Childhood About … [Read more...] about Spotlight – Jeff Wuchich

Filed Under: Advocate Spotlight Tagged With: advocate, alternating hemiplegia of childhood, Duke University

March 30, 2017 by carrie

Spotlight – Madi Vanstone

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Madi Vanstone Patient Advocate | Cystic Fibrosis About Michael: … [Read more...] about Spotlight – Madi Vanstone

Filed Under: Advocate Spotlight Tagged With: cystic fibrosis, legislative, Madi Vanstone, We Are More

March 23, 2017 by carrie

Spotlight – Michael H

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Michael H. Patient Advocate | Mollaret's Meningitis About Michael: … [Read more...] about Spotlight – Michael H

Filed Under: Advocate Spotlight Tagged With: advocate, Mollaret's Meningitis

March 17, 2017 by carrie

Spotlight – Sandra Sermone

It’s time to let the world get to know our amazing rare advocates!  Each week I will be highlighting an advocate here in my blog as well as social media.  If you would like to be featured in the spotlight, please click here. Sandra Sermone Parent Advocate | ADNP Syndrome About Sandra: … [Read more...] about Spotlight – Sandra Sermone

Filed Under: Advocate Spotlight Tagged With: ADNP, advocate, childhood rare disease, Sandra Sermone

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